Sotos Syndrome is also known as cerebral gigantism. It is a condition that occurs due to genetic reasons which leads to having physical overgrowth upon the first years of their life and having a head and facial appearance that are distinctive. The rapid physical overgrowth goes along with the delay of social, language, cognitive and motor development as well as the retardation of the mentality with ranges from mild to severe form.
Organized in 1988, the Sotos syndrome Support Association (SSSA) is made up of families, physicians, genetic counselors, and health care agencies throughout the United States and the world. The SSSA is a nonprofit 501(c)(3) organization which is incorporated in the state of Missouri and run completely by volunteers.
The SSSA is a Member of the National Organization of Rare Disorders (NORD).
So as many of you may know, I write my blog posts in conjunction with events that occur at my school sites. This post has been the most difficult to date. The size and scope of an incident like this occurring on an elementary campus is devastating. I really encourage that parents, teachers, and community members at large help to teach our kids the tools and skills to stay safe.
1 out of 10 children will be sexually abused before they turn 18. Chances are, someone you know has been impacted. Research shows that people who are sexually violated as children are far more likely to experience psychological problems often lasting into adulthood, including post-traumatic stress syndrome, depression, suicide, substance abuse, teen pregnancy, school dropout and relationship problems. (Source)
The Most Important Rule of All by Pam Church
(Prevention And Motivation Programs, Inc., 1997) This book is a read-aloud storybook about child sexual abuse and protection skills for use with children ages 4-8 years. Order here
My Body is Private by Linda Walvoord Girard and Rodney Pate (Albert Whitman & Co., 1992)
Those are MY Private Parts by Diane Hansen (Empowerment Productions, 2005)
Parents and care-givers can use this read-aloud rhyme as a tool to teach children sexual abuse prevention and empower their young children to say NO. Appropriate for ages 4-8.
Building Momentum in Schools 